• Sickle cell anaemia is a genetic blood disorder. Blood cells are shaped like a moon crescent, that does not enable the red blood cell to move easily through the blood vessels. They are stiff and sticky and tend to form clumps and gets stuck in the blood vessels causing blockages in the blood vessels that lead to the limbs and organs.

    This can cause excruciating pain, serious infections, and organ damage such as chest crises, kidney failure, stroke in children and other severe complications.

    Since inception, we have been raising awareness of stroke in children caused by sickle cell anaemia. This is one of the complications that can occur between the ages of 2 – 16 years and can have devastating effects on the family. Many families with that have children affected by sickle cell and stroke do not know where to get support, seek advice or get essential information.

    About Sickle Cell and Young Stroke Survivors

    The aim of the charity is to support to children, young people and their families affected by sickle cell disorders and childhood stroke in a holistic way.

    Our services include:

    1.     SCYSS’s Club which includes:

    • Saturday Cub for 0 – 12 Year olds
    • Youth Club for 13 – 18 year old (up to 21 if they have had a stroke)
    • Playscheme during the summer holidays for 2 to 3 weeks

      • See 2011 Playscheme album

    2.     Family Service and Drop in

    • Information, Advice & Advocacy
    • Support Group
    • Young Carers Support
    • Respite for Parent/Carers
    • Counselling
    • Hospital Visits
    • Outreach
    • Benefit Advice

    3.     Lobbying and Outreach Work

    • Creating awareness on sickle cell & childhood Stroke
    • Lobbying for change of policy at local, national government levels and Parliament.
    • Outreach in the community
    • Attending Networking Events

    4.    Training

    • Sickle cell Training – Knowing the basics
    • Induction for Volunteers

    5.     Mentoring Project

    • Work Experience

    6.    Sickle Cell In Africa Project

    • CarDan Sickle Cell centre – Nigeria

    For more details, contact us.